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CCI (formerly ICCCPO) works to build a world-wide community of childhood cancer organizations representing families of children with cancer and childhood cancer survivor groups. We share information and experience in order to improve access to the best possible treatment and care for children with cancer everywhere in the world. Complete the form to learn more.

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Europe news

The CCI EUrope Folder has arrived!

You want to know more about CCI Europe – who we are and what we do? – Have a look at the new folder!

Click on the link to open this folder: CCI EUrope Folder 2016

Posted on December 22, 2016


European Parliament votes “yes” for improvement of current EU Regulation on Paediatric Medicines.

Click on the link to read more: EU Reg. Paediatric Medicines Press Release

Posted on December 22, 2016


European Commission announces the first 23 European Reference Networks for rare diseases (ERNs) – A milestone for 30 million patients in Europe!

Click on the link to read more: ERNs Press Release

Posted on December 22, 2016


EUROPEAN STANDARDS OF CARE

…because every child with cancer deserves a chance!

That was the motto of this year’s CCI Europe Regional Conference, which took place from 22nd to 24th of April in Belgrade. More than 100 participants from all over Europe came together, in the capital city of Serbia, to exchange experience, views and information, to learn from each other and to share their knowledge.

Amongst many interested and engaged attendees there were Survivors, concerned parents, siblings, employees and CEOs of childhood cancer organizations, as well as medical doctors, psychologists, politicians and other relevant experts.

All of them support and promote European Standards of Care, because in some European countries there is still a lot to catch up, which can be achieved by combined forces, shared knowledge and common aims! Together we can make it!

7th CCI Europe Regional Conference – Outcome Report

Posted on July 05, 2016


International convention of Survivors

Young “survivors” of Firefly Association organized first international convention of young patients treated for malignant disease in the childhood “Little light of hope” in Croatia.

Posted on October 08, 2015

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European Roadmap 2020 – the Parents and Survivors Organizations’ Perspective

by Sabine Karner and Gerlind Bode,

„Alone we can make some difference, but together, we can make sustainable changes“ was the motto of the 6th CCI Europe Regional Meeting, which took place in Malmö (Sweden) from 8 – 10 of May 2015.

Posted on May 27, 2015

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EU projects

CCI (formerly ICCCPO) is partner in a number of EU funded projects. The involvement of parents and patient representatives within such projects is very important for the European Union. CCI is the only officially representation of parents and survivors organisations internationally/Europe.

Here you find the list of ongoing and finished projects, where CCI is/was involved:

Posted on August 13, 2015

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Training courses on clinical trials in Europe

Detailed information about clinical trials is important for parents, patients and survivors. For parent/patient representatives, who are more involved in the clinical trial process, even more knowledge is required, which is offered in specific training courses. Here you find a list of existing courses:

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