CCI believes in the power of collaboration to create breakthroughs and sustain change. It believes alone we can make a difference; working together, we can create lasting changes.
It engages international child focused organizations to support childhood cancer signature events as well as integrate and scale up childhood cancer initiatives in their program portfolios (e.g. International Academy of Pediatricians (IAP) , International Childrens Palliative Care Network (ICPCN) , NCD-CHILD , Children Living Among Neighbours , etc).
To amplify the focus and expand the reach of its initiatives , CCI works alongside other global cancer focused and child focused organizations.
The International Society of Paediatric Oncology (SIOP)
SIOP is an international network of over 1,200 specialist child cancer doctors and nurses. The Society works to improve treatment of child cancer by developing new curative and palliative therapies. It promotes access to the latest treatments through networking conferences and meetings held worldwide. More information please visit www.siop.nl.
SIOPE is a European organisation aimed at promoting optimal standards of care for children and young people with cancer. As a subscriber, you are part of the only pan-European organisation that is dedicated to enhancing cancer awareness, diagnosis and treatment of children:
- Supports and facilitates professional, medical, scientific and educational co-operation and training across Europe
- Integrates patients and parents and bridges the gap between family groups, professionals and policymakers
- Optimises access to information and promotes multi-centre and multinational clinical trials, forming a common platform for best practice guidelines in clinical research
- Promotes better policies for children with cancer and raises awareness of the numerous challenges faced by paediatric oncology professionals to EU policymakers
- Elevates standards for training and care in paediatric oncology and develops European guidelines
For more information please visit www.siope.eu
Sociedad latinoamericana de oncología pediátrica (SLAOP)
More information about the SLAOP http://slaopweb.org/slaopen.asp
Union for International Cancer Control (UICC)
The International Union against Cancer (UICC) is the only international non-governmental organization dedicated exclusively to the global control of cancer. Its vision is of a world where cancer is eliminated as a major life-threatening disease for future generations. More information please visit www.uicc.org.
Founded in 1933, the Union for International Cancer Control (UICC) is the largest cancer fighting organisation of its kind, with more than 400 member organisations across 120 countries.
With its headquarters in Geneva, Switzerland, it is the leading non-governmental, non-profit, non-political and non-sectorian cancer organisation. UICC’s mission is to eliminate cancer as a life-threatening disease for future generations.
UICC is committed to delivering the targets of the World Cancer Declaration through strategic partnerships involving members and other institutions interested in fighting cancer. Together we aim to save millions of lives by focusing on what needs to be done by taking the lead in:
- Raising awareness and education
- Global network of influence
- Taking action where it matters.
CCI is a member of UICC: Download Certificate of Membership 2012
World Health Organization (WHO)
PanCare is a multidisciplinary pan-European network of various professionals as well as survivors and their families that aims to reduce the frequency, severity and impact of late side-effects of the treatment of children and adolescents with cancer. Most European countries are represented. PanCare is working to achieve equity of access to care for childhood cancer survivors across Europe, to perform collaborative research and to act as a resource of research based information concerning all late side-effects of cancer treatment. An important aim of PanCare is to work with the European Community to increase awareness about and research on childhood cancer survivors. The long-term strategic aim of PanCare is to ensure that every European survivor of childhood and adolescent cancer receives optimal long-term care.
EURORDIS – Rare Diseases Europe
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 561 rare disease patient organisations in 51 countries. They are the voice of 30 million people affected by rare diseases throughout Europe. Since 2013 CCI is a member of Eurordis.
International Children’s Palliative Care Network
The ICPCN‘s mission is to achieve the best quality of life and care for children and young people with life-limiting conditions, their families and carers worldwide, by raising awareness of children’s palliative care, lobbying for the global development of children’s palliative care services, and sharing expertise, skills and knowledge
For more information please visit: www.icpcn.org
On the 7th October 1999, the Foundation Maruzza Lefebvre D’Ovidio Onlus was established to replace the Vatican Foundation and to broaden its activities to all the fields of the non-profit sector of palliative care. Today the Maruzza Foundation is a key player in the national and international palliative care scenario.
For more information please visit: www.fondazionemaruzza.org
NCD Child is a global alliance of organizations focused on non-communicable diseases in children and adolescents. The main goals of NCD Child are to advocate for inclusion of children, adolescents, and youth in the global NCD agenda; to promote both treatment and prevention for addressing the NCD burden; and to support inclusion of youth and family voices in the global and country planning for NCDs.
For more information please visit: www.ncdchild.org/
Children Living Among Neighbours (CLAN)
CLAN is an Australian-based, not-for-profit, non-governmental organisation (NGO), approved by AusAID for Overseas Aid Gift Deductibility Status (OAGDS) and the Australian Taxation Office for Tax Deductibility Status. CLAN is dedicated to the dream that all children living with chronic health conditions in resource-poor countries of the world will enjoy a quality of life on par with that of their neighbours’ children in wealthier countries.
For more information please visit: www.clanchildhealth.org
Groups specifically for patients with brain tumors
International Brain Tumor Alliance www.theibta.org
Pediatric Brain Tumor Foundation www.pbtfus.org
The Childhood Brain Tumor Foundation www.childhoodbraintumor.org
The Neuroblastoma Society http://neuroblastoma.org.uk/
International Children`s palliative Care Network www.icpcn.org.uk