Children’s Oncology Group Family Handbook
by childrens oncology group
The Children’s Oncology Group Family Handbook 2nd Edition, provides families with reliable information about treatment, support, and follow-up care for children and young people with cancer. *Also available in French and Spanish.
ADOLESCENTS AND YOUNG ADULTS WITH CANCER:
Battles – Failures – Achievements – Love/ ADOLESCENTES Y JÓVENES CON CÁNCER: Luchas – Fracasos – Éxitos – Amor
by Rosalía Lorenzo González
It is a readable book that goes in depth into the young people’s world to see everything that turns around them. You will know closely this disease through well-documented texts of medical professionals and through testimonies of cancer patients, survivors, parents, siblings, friends and partners. This book deals with topics not addressed before, like the ethical aspects which must be taken into account when talking to adolescents or young people about their diagnosis, fertility, sexuality, etc.
(Only in spanish)
by Comfort First Team (Children`s Cancer
Centre at the Royal Children’s Hospital in Melbourne)
The aim of the Comfort First Program (CFP) is to promote coping skills and good procedural outcomes for children and families (for example early procedural pain management intervention to reduce procedural pain and distress).
Clinical Practice Guideline for Pain Management in Children with Cancer
by Fundación Cris Contra el Cáncer;
Colaboradora: Federación Española de padres de Niños con Cáncer, 2013
This Clinical Practice Guideline for Pain Management in Children with Cancer aims to have up to date information on the outcome of scientific research for all those who are involved in the direct care of children with cancer (nurses, psychologists, carers, oncologists, paediatricians, etc.). The centre of attention is to alleviate pain in children with cancer. Therefore, improving the quality of life and reducing suffering, as well as lessening the anxiety of carers and families.
Emotional Aspects of Childhood Blood Cancers – A handbook for parents
by The Leukemia & Lymphoma Society (USA)
This book is written for parents of young children and adolescents with leukemia or lymphoma who are trying to cope with a most difficult situation. It is for parents who seek support to face and deal with the illness.
Sibling Grief – Healing After the Death of a Sister or Brother
by P. Gill White
It was influenced by the personal experience of the author and is a very comprehensive handbook for grieving siblings as well as their caregivers with a lot of practical advice (for both the grieving sibling as well as their caregivers) and a long book list for further reading.