COLLABORATION & NETWORKING
CCI believes in the power of collaboration to create breakthroughs and sustain change.
It believes alone we can make a difference; working together, we can create lasting changes.
It engages international child focused organizations to support childhood cancer signature events as well as integrate and scale up childhood cancer initiatives in their program portfolios. To amplify the focus and expand the reach of its initiatives, it works alongside other global cancer focused organizations.
Links to organizations in
close partnership
- The International Society of Paediatric Oncology (SIOP)
- SIOP Europe
- Union for International Cancer Control (UICC)
- World Health Organization (WHO)
- International Brain Tumor Alliance
- Pediatric Brain Tumor Foundation
- The Childhood Brain Tumor Foundation
- International Children`s Palliative Care Network
- The Neuroblastoma Society
Establishing and strengthening parent groups
These articles are relevant to the organization and running of parent groups. Some of them address issues faced by many parent organizations, while others are comments on the experiences of various groups.
It is hoped that this body of articles will be added to share and enhance the experiences and expertise of parent groups around the world.
| Title | Author | Date | Download |
|---|---|---|---|
| Practical Advocacy Tips | Carmen Auste | 2011 | |
| Lobbying: Talking with Government and other Agencies | Jim Barclay | 2007 | |
| Grant Writing – Valuable Tips for Grant Seekers | Val Figliuzzi | 2006 | |
| A Guide for non-Profit organisations on Proposal Writing | Ellen Green | 2006 | |
| Parent Mentoring | John Spinetta | 2006 | |
| Continuity, Transition and Governance in Parent Groups | Julian Cutland et al | 2006 | |
| Priority Setting, Benchmarking and Evaluation | Mike Mackay | 2005 | |
| Volunteer Development Programme | Barb Smeltzer | 2005 | |
| Marketing and Branding your Organisation | David Stones | 2005 | |
| Fundraising for Your Group in Developing Countries | Joanna Ramos | 2005 | PDF1, PDF2 |
| Organising a Volunteer Programme in the Paediatric Haematology/Oncology Unit at Johannesburg Hosptial, S.A. |
Sadie Cutland | 2003 | |
| Group Development in Developing Countries | Aaradhna Mittal | 2003 | |
| Organisation Issues and Models for childhood Cancer Parent Groups | Julian Cutland & Simon Lala | 2002 | |
| Research for the Future | Karin Wandrell | 2003 | |
| What do parent groups do and how do they do it? | Mark Chesler | 2001 | |
| Initiation of Parent`s Organization in a Developing Country | SIOP Workshop | 2000 | |
| News release guidelines | ICCCPO Workshop | 1999 | |
| How to maintain a support group | ICCCPO Workshop | 1999 | |
| How to make a Poster | ICCCPO Workshop | 1999 | |
| How to start a Newsletter | ICCCPO Workshop | 1999 | |
| Family Issues: How can a support group deal with the problems experienced by mothers, siblings, adolescents and grandparents? |
ICCCPO Workshop | 1999 | |
| Production of a brochure: some points of interest | ICCCPO Workshop | 1999 | |
| Public relations: What can be gained? | ICCCPO Workshop | 1999 | |
| Some key strategies for the recruitment of new members for your group | ICCCPO Workshop | 1999 | |
| Educational Meetings | ICCCPO Workshop | 1999 |
More for parent groups
LEARNING FROM EACH OTHER
by Stefanie Liener and Michaela Willi, Sao Paulo (2009)
This workshop was held to discuss the importance of sharing experiences and resources and to talk about the advantages of collaboration between parents and survivors.
More information about the workshop “learning from each other“
HOW TO ESTABLISH A MENTORING PROGRAM IN YOUR HOME COUNTRY?
by Eva-Maria Casata and Dorothee Schmid, Mumbay (2007)
Some helpful information for survivors, who are interested to make hospital visits to newly diagnosed children, teenagers or young adults in their home country.
More information about “How to establish a mentoring program in your home country“
YOUR GROUP IS NOT ALONE
A Handbook for New Childhood Cancer Foundations, especially for Developing Countries (2008)
Members of the Executive Committee of ICCCPO created this handbook.
This new handbook incorporates ideas and experiences that have been gained over the years by people within ICCCPO, and is intended to be of value to all those involved in the creation and development of groups involved with childhood cancer, especially in developing countries. It is hoped that it will evolve over time to incorporate input from many other people, so that it becomes a true reflection of the experiences of groups throughout the world.
Handbook for New Childhood Cancer Foundations