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CCI (formerly ICCCPO) works to build a world-wide community of childhood cancer organizations representing families of children with cancer and childhood cancer survivor groups. We share information and experience in order to improve access to the best possible treatment and care for children with cancer everywhere in the world. Complete the form to learn more.

Establishing and Strengthening Parent Groups

These articles are relevant to the organization and running of parent groups.  Some of them address issues faced by many parent organizations, while others are comments on the experiences of various groups.

It is hoped that this body of articles will be added to share and enhance  the experiences and expertise of parent groups around the world.

Title Author Date Download
Practical Advocacy Tips Carmen Auste 2011 PDF
Lobbying: Talking with Government and other Agencies Jim Barclay 2007 PDF
Grant Writing – Valuable Tips for Grant Seekers Val Figliuzzi 2006 PDF
A Guide for non-Profit organisations on Proposal Writing Ellen Green 2006 PDF
Parent Mentoring John Spinetta 2006 PDF
Continuity, Transition and Governance in Parent Groups Julian Cutland et al 2006 PDF
Priority Setting, Benchmarking and Evaluation Mike Mackay 2005 PDF
Volunteer Development Programme Barb Smeltzer 2005 PDF
Marketing and Branding your Organisation David Stones 2005 PDF
Fundraising for Your Group in Developing Countries Joanna Ramos 2005 PDF1, PDF2
Organising a Volunteer Programme in the Paediatric Haematology/Oncology
Unit at Johannesburg Hosptial, S.A.
Sadie Cutland 2003 PDF
Group Development in Developing Countries Aaradhna Mittal 2003 PDF
Organisation Issues and Models for childhood Cancer Parent Groups Julian Cutland & Simon Lala 2002 PDF
Research for the Future Karin Wandrell 2003 PDF
What do parent groups do and how do they do it? Mark Chesler 2001 PDF
Initiation of Parent`s Organization in a Developing Country SIOP Workshop 2000 PDF
News release guidelines ICCCPO Workshop 1999 PDF
How to maintain a support group ICCCPO Workshop 1999 PDF
How to make a Poster ICCCPO Workshop 1999 PDF
How to start a Newsletter ICCCPO Workshop 1999 PDF
Family Issues: How can a support group deal with the problems
experienced by mothers, siblings, adolescents and grandparents?
ICCCPO Workshop 1999 PDF
Production of a brochure: some points of interest ICCCPO Workshop 1999 PDF
Public relations: What can be gained? ICCCPO Workshop 1999 PDF
Some key strategies for the recruitment of new members for your group ICCCPO Workshop 1999 PDF
Educational Meetings ICCCPO Workshop 1999 PDF

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