MEET OUR LEADERSHIP TEAMS

OUR BOARD OF TRUSTEES
OUR REGIONAL COMMITTEES
OUR ADVISORS

OUR BOARD OF TRUSTEES

President

João Maria De Lencastre De Bragança

João de Bragança (Portugal) lost in 2001 his 7 year old daughter Madalena to a diffuse pontine glioma. He is the president of Acreditar, the Portuguese association of children with cancer. He is a mechanical engineer with a Master’s degree in Literature Theory and a doctoral candidate in the same area. After working 20 years for a multinational company he is now a full-time translator.

Organization:
Acreditar
https://www.acreditar.org.pt/pt
Address:
R. Prof. Lima Basto 73, Lisboa, Portugal
Phone: +351 21 722 1150
Email: admin@cci.care

Vice-President

Rodney Wong

Rod is a parent of a 24 years ALL survivor. He was part of the pioneer team of Sarawak Children Cancer Society & is their Immediate Past President.
Currently, he work as a Chief Executive Officer in consumer packaged food company in Malaysia.

Organization:
Sarawak Children Cancer Society
Address:
Lot 5493, Lorong 15 & Jalan Batu Kawa, Taman Desa Wira, 93250 Kuching, Sarawak, Malaysia
Email: admin@cci.care

Treasurer

Mary McGowan

Mary is a registered nurse with over 30 years’ experience in pediatric oncology. She is the Community Liaison Manager of the Children’s Cancer Centre at the Royal Children’s Hospital Melbourne, Australia, and facilitator of the Parent Advisory Group of the Cancer Centre.

Organization:
Children’s Cancer Centre Parent Advisory Committee (PAG)
Address
Children’s Cancer Centre Royal Children’s Hospital,
50 Flemington Road, ParkvilleVIC,
3053 Viktoria
AUSTRALIA
Tel./Fax: +61 3 93454855 / +61
E-mail: admin@cci.care

Secretary

Luisa Basset

Luisa is mother of a survivor of a mature B-cell ALL diagnosed in 1990. Since then, she is involved at local, national and international levels, representing Federación. Española de Padres de Niños con Cáncer. She is an architect and Professor at the School of Architecture in Valencia.

Organization:
Federación Española de Padres del Niños con Cáncer (F.E.P.N.C.)
Address
C/ Monte Olivetti, 18, Local 1 (c.v. a c/ Bustos 3),
28038 Madrid
SPAIN
Tel: +34 606 100 693 (mobile phone)
E-mail: admin@cci.care

MEMBERS

Daniel Mckenzie

Executive Director of Kidzcan Zimbabwe, a local NGO in Zimbabwe. Daniel is a great communicator and renowned broadcaster. He is an excellent diplomat, with great empathy and passion towards making a difference in the lives of children suffering from cancer.

Organization:
Kidzcan Zimbabwe
Address
6 Natal Road, Belgravia, Harare
E-mail: admin@cci.care

Nicole Scobie

Nicole is the mother of three boys, one of whom is a survivor of childhood cancer. She is the president of Zoe4life, a non-profit organization based in Switzerland which supports kids with cancer and their families, funds and advocates for research. She is also on the Accelerate platform steering committee. .

Organization:
Zoé4life
Address
1036 Sullens, SWITZERLAND
E-mail: admin@cci.care

Immediate past-President

Ruth Isabella Hoffman MPH

Ruth is the mother of eight children, including 35 year old Naomi, a 28 year survivor of AML. Ruth is the Executive Director of the American Childhood Cancer Organization and is author/ editor of 11 childhood cancer learning resources.

Organization:
American Childhood Cancer Organization
Address
10920 Connecticut Ave. Suite A
Kensington, MD 20895
UNITED STATES
Tel: +1-301-962-3520
E-mail: admin@cci.care

Marcela Zubieta Acuna

Marcela is a pediatrician who lost her 3 year old daughter to a brain tumor (Choroid Plexus Carcinoma). The tragic experience made her refocus her professional and social life to serve underprivileged children with cancer living in Chile.

Organization:
Fundación Nuestros Hijos
Address:
Barros Luco No. 3103, San Miguel, Santiago de Chile, CHILE
Tel: +56-2-480 5960 Fax: +56-2-556 8840
E-mail: admin@cci.care

Nagm Azar

Nagm is a parent of a survivor and has served CHOC since 1999 as a volunteer. He is married to Heloise and has two boys. He is a Financial Planner, Wealth Manager and currently serves on the CHOC board as Chairman and is very passionate about making sure that the parent and child who suffers from cancer can get the best possible support that can be provided in South Africa

Organization:
CHOC Childhood Cancer Foundation
Address:
PostNet Suite 105, Private Bag X2600, Houghton 2041, South Africa
Tel: +27 86 1113500
E-mail: admin@cci.care

Roles and Responsibilities of Board Members

VIEW AND DOWNLOAD THE 2016 VERSION HERE

OUR REGIONAL COMMITTEES

CCI Regional Committees are coordinating and supportive mechanisms which are intended to provide guidance and support to member organizations within their region.

They serve as catalysts and enablers : a) helping to more fully engage and involve CCI member organizations, b)sustaining their drive and passion , c) encouraging them to work more closely with other CCI members within their region and beyond and d)supporting them to expand and deepen their existing alliances and partnerships.

The current regional committee members are as follows:

ASIA

Name Country Organization
Benson Pau (Chair) China, Hong Kong Pau Kwong Wun Charitable Foundation
Carmen Auste Philippines Cancer Warriors Foundation
Poonam Bagai India Cankids….Kidscan
Kazuyo Watanabe Japan ACCL (Asian Children’s Care League)
Saideh Ghods Iran MAHAK
Kohsuke Yamashita Japan CCAJ (Children’s Cancer Association of Japan)
Ira Soelistyo Indonesia YKAKI
Roula Farah Lebanon CHANCE
Bindu Nair India Aroh
Gary Ho Malaysia Sarawak Children’s Cancer Society
Manal Elewah Egypt Art2Care
Sawsan Abdul Salam Al Madhi UAE Friends of Cancer Patients

EUROPE

Name Country Organization
Anita Kienesberger (chair) Austria Österreichische Kinder-Krebs-Hilfe
Luisa Basset Spain Fed. Española de Padres de Niños con Cáncer
Lejla Kameric Bosnia & Herzegovina Udruženje “Srce za djecu koja boluju od raka”
Holly Wattwil Sweeden Barncancerfonden
Nicole Scobie Switzerland Zoé4life
Anne Goeres Luxembourg Fondatioun Kriibskrank Kanner
Frédéric Arnold France UNAPECLE
Delphine Heenen Belgium KickCancer
Jaap den Hartog (Survivor) The Netherlands Vereniging Ouders, Kinderen en Kanker
Carina Schneider (Survivor) Austria Österreichische Kinder-Krebs-Hilfe
Zuzana Tomášiková (Survivor) Switzerland Kinderkrebs Schweiz
Harun Šabić (Survivor) Bosnia & Herzegovina Udruženje “Srce za djecu koja boluju od raka”

OCEANIA

Name Country Organization
Simon Lala New Zealand Child Cancer Foundation
Mary McGowan Australia Children’s Cancer Centre Parent Advisory Committee
Anne Kaye Australia Children’s Cancer Centre Parent Advisory Committee
Kate Crowley Johnson Australia Children’s Cancer Centre Parent Advisory Committee

LATIN AMERICA

Name Country Organization
Marcela Zubieta (chair) Chile Fundación Nuestros Hijos
Nubia Mendoza Honduras Fundación Hondureña para el Niño con Cáncer
Yolima Méndez Camacho Colombia Fundación Colombiana de Leucemia y Linfoma
Miguel de la Fuente Perú Fundación Peruana de Cáncer
Alexandra Matos de Purcell Rep Dominicana Fundación Amigos contra el Cáncer Infantil

AFRICA

Name Country Organization
Daniel McKenzie (chair) Zimbabwe KidzCan
Dr John Ahenkorah Ghana GHAPACC
Brian Walusimbi Uganda Bless a Child Foundation
Sidney Misigo Chahonyo Kenya Hope for Cancer Kids
Prof Yasser Saad-Eldin Egypt Alexandria Group
Dr Ihesinachi Kalagbor Nigeria Simara Children Cancer Foundation (SCCaF)

OUR ADVISORS

Our advisors and honorary members

A number of the senior and retired members of the Executive Committee have agreed to continue to serve the organisation in an advisory capacity.
Their basic contact details are given below. To get specific contact details, please write us: admin@cci.care

Name Country of origin
Anita Kienesberger Austria
Benson Pau China, Hong Kong
Gerlind Bode Germany
Marianne Naafs-Wilstra Netherlands
Simon Lala New Zealand
Julian Cutland South Africa
Sadie Cutland South Africa
Christine McIver Canada
Mark Chesler United States of America
Gill Thaxter (for Geoff Thaxter) United Kingdom
Tim Eden United Kingdom
Jesus Maria Gonzalez Marin Spain