MEET OUR LEADERSHIP TEAMS

OUR BOARD OF TRUSTEES
OUR REGIONAL COMMITTEES
OUR ADVISORS

OUR BOARD OF TRUSTEES

President

João Maria De Lencastre De Bragança

João de Bragança (Portugal) lost in 2001 his 7 year old daughter Madalena to a diffuse pontine glioma. He is the president of Acreditar, the Portuguese association of children with cancer. He is a mechanical engineer with a Master’s degree in Literature Theory and a doctoral candidate in the same area. After working 20 years for a multinational company he is now a full-time translator.

Organization:
Acreditar
https://www.acreditar.org.pt/pt
Address:
R. Prof. Lima Basto 73, Lisboa, Portugal
Phone: +351 21 722 1150
Email: admin@cci.care

Vice-President

Rodney Wong

Rod is a parent of a 24 years ALL survivor. He was part of the pioneer team of Sarawak Children Cancer Society & is their Immediate Past President.
Currently, he work as a Chief Executive Officer in consumer packaged food company in Malaysia.

Organization:
Sarawak Children Cancer Society
Address:
Lot 5493, Lorong 15 & Jalan Batu Kawa, Taman Desa Wira, 93250 Kuching, Sarawak, Malaysia
Email: admin@cci.care

Secretary

Luisa Basset

Luisa is mother of a survivor of a mature B-cell ALL diagnosed in 1990. Since then, she is involved at local, national and international levels, representing Federación. Española de Padres de Niños con Cáncer. She is an architect and Professor at the School of Architecture in Valencia.

Organization:
Federación Española de Padres del Niños con Cáncer (F.E.P.N.C.)
Address
C/ Monte Olivetti, 18, Local 1 (c.v. a c/ Bustos 3),
28038 Madrid
SPAIN
E-mail: admin@cci.care

MEMBERS

Daniel Mckenzie

Executive Director of Kidzcan Zimbabwe, a local NGO in Zimbabwe. Daniel is a great communicator and renowned broadcaster. He is an excellent diplomat, with great empathy and passion towards making a difference in the lives of children suffering from cancer.

Organization:
Kidzcan Zimbabwe
Address
6 Natal Road, Belgravia, Harare
E-mail: admin@cci.care

Nagm Azar

TREASURER

Nagm is a parent of a survivor and has served CHOC since 1999 as a volunteer. He is married to Heloise and has two boys. He is a Financial Planner, Wealth Manager and currently serves on the CHOC board as Chairman and is very passionate about making sure that the parent and child who suffers from cancer can get the best possible support that can be provided in South Africa

Organization:
CHOC Childhood Cancer Foundation
Address:
PostNet Suite 105, Private Bag X2600, Houghton 2041, South Africa
Tel: +27 86 1113500
E-mail: admin@cci.care

Kate Johnson

Kate is the mother of a childhood cancer survivor. Since 2017 she has been the Chair of the Parent’s Advisory Group in the Children’s Cancer Centre at the Royal Children’s Hospital where she is passionate about enhancing the patient experience and raising awareness of paediatric cancer. Kate has a PhD in Sleep Psychophysiology. She is based in Melbourne, Australia where she lives with her husband and 4 children.

Alejandra Mendez

Alejandra is the mother of a childhood cancer survivor. After that experience, she decided to devote herself to giving every child who is diagnosed with cancer the same opportunities to survive the disease. Since 2015, she has volunteered as a teacher at the in- hospital school that Fundación Nuestros Hijos runs in Chile. She also serves as Vice President and board member of the organization. Since 2021 she serves as a member of the Board of Trustees at CCI (Childhood Cancer International) and as the Co-Chair at the SIOP Global Health Network PFSE Working Group (Patient, Family, Stakeholder Engagement)

Alejandra holds a degree in education and translation from Universidad Católica de Santiago, and a Certificate in Non-Profit Management from Harvard University. She is based in Santiago, Chile where she lives with her husband and three sons.

Organization:
Fundación Nuestros Hijos  www.fnh.cl
Address:
Club Hípico 4676, Pedro Aguirre Cerda, Santiago 8460445
Chile

Bindu N Nair

Bindu N Nair is the Founder and Managing Trustee of  Aroh-Giving Hope which started in 2013 in South India to help the children with Cancer in her city. Aroh now works with 40+ hospitals in India, supporting more than 5,000 children. She has 20 years of experience in Social Work and has taken the cause of Childhood Cancer as her mission in life. She also holds Double Masters in both English Language  and Literature and Sociology.

Organization:
Aroh-Giving Hope
Address:
House No.57
Sri Lakshmi Nagar
Ganapathy
Coimbatore – 641006
Phone NUmber : 9003888881

Roles and Responsibilities of Board Members

VIEW AND DOWNLOAD THE 2016 VERSION HERE

OUR REGIONAL COMMITTEES

CCI Regional Committees are coordinating and supportive mechanisms which are intended to provide guidance and support to member organizations within their region.

They serve as catalysts and enablers : a) helping to more fully engage and involve CCI member organizations, b)sustaining their drive and passion , c) encouraging them to work more closely with other CCI members within their region and beyond and d)supporting them to expand and deepen their existing alliances and partnerships.

The current regional committee members are as follows:

ASIA

Name Country Organization
Benson Pau (Chair) China, Hong Kong Pau Kwong Wun Charitable Foundation
Carmen Auste Philippines Cancer Warriors Foundation
Poonam Bagai India Cankids….Kidscan
Kazuyo Watanabe Japan ACCL (Asian Children’s Care League)
Saideh Ghods Iran MAHAK
Kohsuke Yamashita Japan CCAJ (Children’s Cancer Association of Japan)
Ira Soelistyo Indonesia YKAKI
Roula Farah Lebanon CHANCE
Bindu Nair India Aroh
Gary Ho Malaysia Sarawak Children’s Cancer Society
Manal Elewah Egypt Art2Care
Sawsan Abdul Salam Al Madhi UAE Friends of Cancer Patients

EUROPE

Name Country Organization
Anita Kienesberger (chair) Austria Österreichische Kinder-Krebs-Hilfe
Luisa Basset (vice-chair) Spain Fed. Española de Padres de Niños con Cáncer
Michaella Willi (survivor) Austria Survivors Austria
Delphine Heenen Belgium KickCancer
Lejla Kameric Bosnia & Herzegovina Udruženje “Srce za djecu koja boluju od raka”
Harun Šabić (survivor) Bosnia & Herzegovina Udruženje “Srce za djecu koja boluju od raka”
Frédéric Arnold France UNAPECLE
Georgia Kokkinou Greece Floga
Anne Goeres Luxembourg Fondatioun Kriibskrank Kanner
Tiago Costa (survivor) Portugal Acreditar
Zuzana Tomášiková (survivor) Switzerland Kinderkrebs Schweiz
Nicole Scobie Switzerland Zoé4life

OCEANIA

Name Country Organization
Simon Lala New Zealand Child Cancer Foundation
Mary McGowan Australia Children’s Cancer Centre Parent Advisory Committee
Kate Crowley Johnson Australia Children’s Cancer Centre Parent Advisory Committee

LATIN AMERICA

Name Country Organization
Marcela Zubieta (chair) Chile Fundación Nuestros Hijos
Nubia Mendoza Honduras Fundación Hondureña para el Niño con Cáncer
Yolima Méndez Camacho Colombia Fundación Colombiana de Leucemia y Linfoma
Miguel de la Fuente Perú Fundación Peruana de Cáncer
Alexandra Matos de Purcell Rep Dominicana Fundación Amigos contra el Cáncer Infantil
Carlos A.Aguilar Frias (survivor) Mexico Faros de vida
Francisco Javier Galván Villarreal Mexico CANICA, Centro de Apoyo a Niños con Cáncer A.C.

AFRICA

Name Country Organization
Nagm Azar (chair) South Africa CHOC Childhood Cancer Foundation
Daniel McKenzie (vice -chair) Zimbabwe KidzCan
Dr John Ahenkorah Ghana GHAPACC
Brian Walusimbi Uganda Bless a Child Foundation
Sidney Misigo Chahonyo (survivor) Kenya Hope for Cancer Kids
Prof Yasser Saad-Eldin Egypt Alexandria Group
Dr Ihesinachi Kalagbor Nigeria Simara Children Cancer Foundation (SCCaF)
Naïma Otmani Morocco Association l’Avenir

OUR ADVISORS

Our advisors and honorary members

“The General Assembly can appoint a natural person as honorary member who, by virtue of their qualities or mission, has benefited and/or will benefit the Association in achieving its aims.”

Some of them agreed to continue to serve the organisation in an advisory capacity.
To get specific contact details, please write us: admin@cci.care

Name Country of origin
Anita Kienesberger Austria
Benson Pau China, Hong Kong
Gerlind Bode Germany
Marianne Naafs-Wilstra Netherlands
Simon Lala New Zealand
Julian Cutland South Africa
Sadie Cutland South Africa
Christine McIver Canada
Mark Chesler United States of America
Gill Thaxter (for Geoff Thaxter) United Kingdom
Tim Eden United Kingdom
Jesus Maria Gonzalez Marin Spain
Carmen Auste Philippines